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Begonya Nafria Escalera

Trainer


She works in the Patient Engagement in Research Area at Sant Joan de Déu Research Foundation (Spain). She has long experience in the field of the involvement of patients and families in research initiatives. She has also a personal story as a caregiver and patient advocate because is the sister of a young adult with cerebral palsy. Her areas of expertise are focused in paediatric patients involvement in research and specifically in the field of clinical trials. Another relevant background of her profile is: Coordinator of eYPAGnet (European Young Patients Advisory Group Network – www.eypagnet.eu), Coordinator of Kids Barcelona (YPAG of Sant Joan de Déu Children’s Hospital- www.kidsbarcelona.org), member of Children’s Medicines Working Party of EFPGCP, The main aim of all the activities led or participated by Begonya is to achieve a better quality of life for the paediatric patients' thanks to research and new therapies.
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